This is our story of trying to round out our 10 months old flat head. He has mild brachycephaly\plagiocephaly and will wear a helmet. We hope to share the information and research that we find along the way and continue to learn as we go. Hopefully we can be a source of comfort to you in your own journey as we seek our own comfort in knowing that we're doing what's best for our son.

Tuesday, February 15, 2011

2 Week Check Up

Today we went to see BJ for our 2nd week check up.
He was very pleased with Easton's growth.
There are bumbs and knots coming out all over!
That sounds like a bad thing, but it's not, it's GREAT!
He will see us again next Thursday.
He'll take measurements of his head then for us to take to Dr. Kelly on March 2.
He's expecting 3-4% change on his cephalic index.
I'm anxious for those numbers!

So, here's the head pix for today.
2 weeks into treatment:

Look at that bump!
Now, that's what I call progress!





Easton continues to do wonderfully with his helmet.
He's napping and sleeping good with it and plays normally as well.
In fact, he's started trying to put it on himself when it's drying after we clean it.
We put it on the vent in the bathroom floor to dry and he'll go in there and get it and try to put it on his head!
Little stinker!
This has not been near as traumatic as what I thought it would be!
Such an encouragement to see this progress!

Happy Head Rounding!

Wednesday, February 9, 2011

Appointment with BJ

Our appointment with BJ went well yesterday.
He was pleased with Easton's head.
He could see a change in the bottom of his head...where most people have that bump that sticks out.
Easton didn't previously have that, but now he does.  It's coming out quite nicely.
He also cut the face part of the helmet out some so it opens up  his face more.
He looks like Easton again.
He also shaved some of the foam off the underside of the helmet around his face so it's more comfortable.
No more wonky eyebrow.
He can now look up and SEE you instead of his eyebrows pushing down.

We go back in another week.
We'll see how much progress is made then.
That will be a whole week of 23\1.

As for naps and sleep, those were my biggest concerns but he's doing well.
As long as you keep it cool (around 64-66) in his room he sleeps right through.
The helmet makes him really warm so to avoid overheating we keep it COOL.

Nevermind that Lance and I are fully clothed from head to toe all night!  ;)


Monday, February 7, 2011

23 Hour Day- SUCCESS

As far as the helmet goes, his first 23 hour day was a success. 
He slept fine with it, and played at school perfectly.
Easton....well, he's got a snotty nose, he's teething and tired...
so this afternoon was... well...exhausting.

But, we're praying for another good night's rest so we'll all be rejuvinated in the morning.

We've got our week appt with BJ tomorrow.
I'm excited to see what he thinks of Easton's head!



Night 1- Success

Easton slept just fine in his helmet all night!!!  :)

He was 'required' to wear it for 8 hours, but we left him in it all night. 
No need to wake a sleeping baby...right???

He wore it 10 1\2 hours.  That's the longest so far.

Until today.  Today is our first 23 hour day. 

Sunday, February 6, 2011

Day 6- Night 1

Today was 8 hours day/ 8 hours night.

8 hours day went very well.
We went to church for the first time in his helmet.
The response was fine.  Not that I was expecting any different from my wonderful church family.

Helmet was on from 8-4
and on again at 7:45.


He nursed in his helmet tonight and I laid him down for bed...when normally my quiet baby drifts off to never never land...but tonight, up pops his little head in that big blue helmet.
I walked out of the room and the crying began.
It was short lived. 
3 minutes at most.

Right now he's asleep so we're hoping he stays that way.
IF by some chance he doesn't,
I'm blaming it on the snotty nose and the teeth about to make their way through. 
He was a little fussy tonight and didn't sleep worth a toot last night (without helmet) so I don't think we can blame the helmet IF he does wake up!

Here's hoping to a good night's rest.

Saturday, February 5, 2011

Day 5

More of the same today.
Today's schedule was 6-8 hours on 1 hour off, twice.
Well...we kinda make our own schedule today
He wore from 8am-4:15pm
and
5:15pm-7:30pm

Today was our first 'outing'
He's worn it to school all week but today was the first day in stores.
We went to Hobby Lobby, Target and Joann's.

I didn't have any strange comments.

But...I have discovered there are 3 different kinds of people
The NO LOOKERS- you KNOW they see you, but they look beyond you at all cost, not knowing
whether to smile or cry...so they just don't look
Then you've got the LOOKERS- these people look...but they look at you pitiful like they feel really sorry for you/and baby
Then you have the ACTIVE LOOKERS- these people WANT so bad to look that they strike up a converstaion with you about how cute your baby is and what a pretty smile he has or how sweet his eyes are...all the while really wanting to say 'why does he have that helmet on?'

It's funny, everyone I made eye contact with I wanted so badly to say, 'there's nothing mentally wrong with my child, he's perfectly fine- see he can wave, clap, smile on command, he's just got a flat spot on his head and we're fixing it'.
But, I can't. 
I just smile and hope they see that we are happy!
And don't need any pity. 
:)

Happy Saturday!


Friday, February 4, 2011

Day 4

Today went well.
Today was 6 hours on 1 hour off, twice. 
Because of our schedule, we did 6 hours and 5 hours.
7am-1pm
2pm-7pm
Naps were a little off today.
He took 2 back to back short naps and no afternoon nap so he was a little fussy tonight.
I considered pulling the helmet off to see if it was bothering him, but I restrained.
He just needed a little extra TLC tonight.

Also, his head is a hot sweaty mess when the helmet comes off so we're gonna have to go back to baths every night.

When we took his thinkin cap off...we REALLY could see a difference. 
He did have a pretty definite straight line on the top of his head, but tonight it looked a bit rounded!
HOORAY!

So, all in all, 4th day was a success.